Casting An Actor with Albinism

The Importance of Authenticity On Stage

How do you cast authentically when there is not a single actor of a certain identity to be found within your community? If my mission as a playwright is to share stories of the underrepresented, then how can I cast an actor who lacks the marginalized identity my script requires? This obstacle is an important element of the current fight for fairness in casting, and I encountered it full-force on my own journey to find a Black teenage male actor with albinism.

My work tends to focus on miscommunications and misunderstandings between the West and Africa. A few years ago, my Nigerian father mentioned an old tradition in his culture of superstitions about people with albinism (PWA) (note: the use of the term “albino” is considered derogatory for some with the condition) for which they are often hunted and killed. My dad has lived in the US for over forty years, so his storytelling of home is stuck in the past even when tied to present tense verbs; for this reason, I assumed this trend couldn't possibly be ongoing. I decided to look into it. As a Nigerian American I am in constant conflict between heightened awareness of widespread misconceptions of non-Western cultures (my global side) and sheer shock and horror at the encountering of some ritual practices (the good ole American in me). After the conversation with my dad, my research led me to the discovery that the attacks on people with albinism in Nigeria were fortunately significantly past tense, but that they were very much present and continuous in other African nations. In fact, even today, Tanzania has one of the highest global rates of PWA, and they are frequently attacked and killed for the sale of their bodies to witch doctors for good luck potions.

To dramatize this unfortunate story, I wrote Chisel, a two-character play about a Black American teen with albinism and his interaction with a biracial Tanzanian art student. I found the PWA killings to be an interesting concept to place in conversation with the American assassinations of this era—those of Black men by police—and also deal with racial identity for two young characters who fall into the “gray” between Black and White. Sal, my teen protagonist, is in conflict with his albinism because he doesn’t feel that he’s accepted as a Black Lives Matter activist due to his lacking pigmentation. He therefore engages in an aggressive activity that lands him in a juvenile detention center. Alice—his counter—struggles with being mixed race in a culture that often resents non-native citizens. I finished a draft of the play and placed it aside a few years ago, mainly because I had no idea who would perform either role, especially that of Sal.

Would an audience be able to gather the full weight of the story—centered on the identity of a young man with albinism—if the actor playing the role did not have this condition?

two actors performing in a staged reading
Chisel actors Jordan White and Cherie Carter. Photo by Jaliku Levines.

The representation struggle has become all too familiar these days, from the rampant cultural appropriation of hip-hop to Katy Perry’s kimonos and dreadlocks to the whitewashing and gender identity-crossing of Hollywood via the likes of Scarlett Johansson. It’s nothing new in theatre, either. Yet an important part of the conversation is the challenge of representing marginalized identities when privileged bodies are so much more accessible on casting couches. Constant rejection and appropriation discourages underrepresented actors, making it even more difficult to get them into the room. The unfortunate result is that more privileged actors get more opportunities to hone their skills in all levels of theatre.

Some time into my own representation journey, my friend Bri, who was set to perform the role of Chisel’s Alice for a reading, sat down to help me brainstorm possible actors to play the PWA male character Sal. We were at a loss. Would an audience be able to gather the full weight of the story—centered on the identity of a young man with albinism—if the actor playing the role did not have this condition? It felt so important to see him. We started exploring our social media friend lists for any light-skinned actors we knew that might be close enough. None of them seemed to fit, so we decided that the absolute minimum at that moment was to find somebody who would understand Sal’s journey intellectually and be willing to engage in conversation about the PWA plight. We got in touch with Tom, a TV actor and a fellow USC alum. The fit was perfect, and the reading was quite successful, but the question of course came up: was this play cast-able?

Is it worth the ongoing and discouraging search for an actor of a marginalized identity when there are so many of privilege willing to play the role?

I believe it is.

So, I persisted. Everywhere I went, to anyone I met, I mentioned Chisel and my struggle to find an actor. I spoke of the PWA attacks in my classes on culture. I emailed modeling and casting agencies. I asked my acting students if they knew of anyone, even from back home (many were international). The result was a sharing and tagging anytime a friend or colleague saw a story on albinism and a collection of books and magazine articles sent by friends, yet still no Sal.

I firmly believe that the theatre community can work together to hold each other up in the mission toward authentic casting.

Perhaps six months after the reading, I got a message from Tom: “I see the Tanzanian albino girls we talked about in rehearsals.” The girls were Tindi and Bibiana Mashamba, sisters who were in Los Angeles on refuge after Bibiana had been attacked and lost a leg and fingers. They were at his local lunch spot. My heart jumped with joy. “Well talk to them!” I waited impatiently. Hours later, he told me he’d lacked the nerve to speak to them: “I didn’t know what to say. Sorry.”

And here we encountered the next obstacle on our mission: the hypocrisy of drawing attention to albinism when the heart of Chisel’s story is about a desire for acceptance instead of social isolation. If I were to pass a Black male with albinism that looked like a possible Sal, what would I say to him? You’re a PWA, I need you? Fortunately, it turned out Tom and the girls were great fans of this lunch spot. He saw them a few months later and asked if they would be interested in meeting up with the Chisel team. They were overjoyed (probably because they recognized him from TV, but I’ll take it). Their host and co-founder of African Millennium Foundation Malena Ruth arranged for us to all have tea. During our meeting, they told the story of Bibiana’s attack, and we were all horrified by their trauma yet inspired by these two warriors. We made plans to keep in touch throughout the Chisel journey.

If only these girls had been actors.

Despite these frequent roadblocks, I firmly believe that the theatre community can work together to hold each other up in the mission toward authentic casting. In my own case, it was the unending support of my colleagues that inspired me to persevere. I think most of us want representation; the challenge is the grit that it requires.

three actors onstage while a director gives notes
Actors Joshua Michael Moore, Cherie Carter, and Jordan White in rehearsal with director Nathan Singh. Photo courtesy of Julie Taiwo Oni.

A year or two after the initial Chisel reading, with a second reading under our belt but still no PWA actor for Sal, a new theatre colleague sent me a message on Facebook. It was a post of a Black actress with albinism based in Chicago, and it included her contact information. “Literally just saw this after you mentioned your search to me,” she wrote. I thanked her for the information, but lacked the nerve or energy for another email letdown, so I didn’t reach out. I focused on other projects until a few months later, when Chisel re-entered my spirit. I emailed the PWA actress a long, detailed, impassioned letter about my journey and how excited I was to be connected with her. I didn’t expect a reply. Ten minutes later, I got one. She’d been waiting to hear from me and was as excited as I was to be in touch.

I sent her Chisel and thought that perhaps I could find a way to cast her in the male role or adjust the script’s gender dynamics. She gave me the most heart-felt and thorough script feedback I had received, noting the ringing-true to her experience and sharing questions that came up. Casting her proved an impossibility because of the story’s essential commentary on Black male experience, but I promised to keep in touch and update her on the process. We made plans to collaborate in the future, and I asked if she knew any male PWA actors.

She did!

This is it, I said to myself, crafting another heartfelt email, this time, at long last, to a Black male actor with albinism. I got no reply. I was back to square one, even with some strong and inspiring ladies in my court.

A few weeks later, I was scrolling through my Instagram when I saw a post from @albinism_beautiful, a group I’d been following for years but hadn’t seen active for some time. It hit me that the members of this particular community might be worth approaching. I searched through the posts on the page, and the second I passed the profile of Jordan White, an eighteen-year-old young man from Atlanta, I knew I’d found my Sal. He was a Black teenage male with albinism with the description “Actor/Model.” I didn’t wait this time. I messaged him immediately, and heard back within an hour or so. We began an ongoing dialogue about my play.

It turned out one of Jordan’s most prominent performances was tied to another PWA actor’s casting in a TV series shot in his city. Marginalized groups do have this profound ability to hold each other up, but we need to see that others respect our stories as well by pushing forth characters that are multidimensional—not archetypal. And we need the space to bring them to life ourselves. This is the key to representation.

On 14 June 2018, Jordan flew to LA for the first time to perform in a reading of Chisel at Pepperdine University, where I work. The Department of Humanities and Teacher Education generously hosted him for Albinism Awareness Day. After months of talking through the script and planning, we finally met in person.

five people outside smiling
The Chisel team—Joshua Michael Moore, Cherie Carter, Julie Taiwo Oni, Jordan White, and Nathan Singh. Photo courtesy of Julie Taiwo Oni.

I was shocked by this young man. He reminded me of the importance of life experience and observation to breathe humanity into a story. Jordan was an articulate, enthusiastic, hilarious, and confident guy. When he entered the theatre, fresh off a long flight (and the first of his life), he greeted us all with handshakes and hugs, pumped and ready. I had anticipated—after all these years of studying the oppression of PWA—to encounter a shy and self-conscious young man who would need time to warm up to us; he was just the opposite.

“I like to be seen,” he said as we drove down Pacific Coast Highway after that first rehearsal. “I used to be mad all the time and hate the stares, but now I just smile.”

In a world of rampant cultural and identity appropriation, we have a responsibility as practitioners of live performance to allow the audience to experience another’s story truthfully. The joy of encountering an underrepresented actor onstage playing a character of his or her actual identity is too powerful to forego. The more marginalized actors see themselves represented authentically, the more they will start to fill our casting couches. The maze will dwindle.

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Very excited to read about your fantastic work. I am a Ford Foundation Fellow who has a disability and has been working with a group of people concerned with the lack of representation in media behind and in front of the camera of disability. Your work is a powerful example of what needs to happen to begin to ensure authentic representation of disability. While not all people who come from the Albanism community consider themselves to have disabilities, many do. Enabling people to tell their stories that can be heard by many is very powerful. Thank you for your work. If you are interested in meeting others that are doing work to advance the inclusion of disability in media or wish to learn more about work that is being done to expose society to the atrocities being perpetrated against those with Albinism and other disabilities I am more then willing to help you make connections.

What do you think is the difference (if any) between actively searching for people to play roles so that they are represented and seeking actors/performers and making them feel tokenized? I find myself asking myself this question a LOT because as Black and Cherokee actress, I find that I become frustrated when I feel limited to roles or only get offers for roles specifically for my racial/ethnic identity... but as a writer, I write very specific characters and only want their stories to be told by people who have lived those experiences or understand them in a way that no one else can.

Hi, Cynthia! Thank you for reading and sharing your thoughts! Yes: I do think there is a difference between representation and tokenizing. I think that there need to be multiple stories about underrepresented identities, not all of which need to focus on their category as the center of the story. I actually am working on an entire series for my play with that goal in mind. I think that the more opportunities that marginalized actors receive, the more they will be considered for a wide range of roles. I agree with you that it's such a tricky situation because minority actors want to be considered for more roles, yet I also think that they feel that a lot of roles about their own identities are stereotypical/less appealing. The mission should be to create roles that are attractive and complex for marginalized actors, but to allow them to represent broader communities as well.