I knew I was a performer before I knew I was disabled. At thirteen, I acted in my first professional production in New York City, full of passion, excitement, and pubescent nerves. I also started experiencing constant, deep, severe pain shooting through my back, accompanied by fatigue and nausea. I spent as much time in and out of doctor’s offices as I did in rehearsals, something that has become my norm almost a decade later. I now identify as an invisibly and physically disabled actor and musical theatre performer. I have fibromyalgia, psoriatic arthritis, dysautonomia, temporomandibular joint dysfunction (TMJ), and a myriad of accompanying symptoms and chronic illnesses; and time spent performing is the only time when I am not in pain. Now, theatre is part of the fabric of my identity as much as my disability is.
Current research shows that one in four American adults has a disability, making it the largest minority group, but one that is the least represented in theatre. In my experience, I am often the only person in the room existing in a disabled body, and I have come to understand how ableism is deeply woven into the theatre industry. From harmful disabled stereotypes to ableist barriers, so many foundational aspects of our industry perpetuate the exclusion of disabled bodies in theatre.
The disability first mindset promotes empathy, understanding, and equity by thinking the way a disabled person already thinks.
Debbie Patterson, disabled theatremaker and scholar, writes that “the systemic exclusion of people of diverse identities within artistic practices is not only politically problematic, it is artistically detrimental.” Disabled voices have so much to offer to our craft; and the way to reverse corrupt structures is through a radical, expansive shift in thinking and behavior towards a theatre culture that is not just disability tolerant, but disability first, a term I coined while studying disability scholarship. In a disability first mindset, every decision (creative, interpersonal, structural, logistical) is made through the lens of disability. A disabled person has no choice but to consider their disability when making any decision, so the disability first mindset promotes empathy, understanding, and equity by thinking the way a disabled person already thinks.
Patterson also speaks about “cripping up” theatre, meaning “embracing the disruptions created by disability to open up previously unimagined possibilities…working from the assumption that…disability is a rich source of artistic innovation and risk. This [isn’t] about compromising or accommodating or making do, this [is] about unearthing opportunities for deeper truths to emerge.” Simply put, instead of seeing an actor’s disability and need for accommodations as a disruption to the work, “cripping up” the work actually opens the door to many new, innovative artistic possibilities. Scholar Megan Johnson writes that when consciously choosing to “crip up” theatre practices, “artists move beyond just centering disability onstage to using performance as a way of illuminating the oppressive power structures that undergird the projects of compulsory ablebodiedness/ablemindedness in both performance and broader social contexts.”
What follows are eight transformative avenues that aim to rectify the inaccessibility, underrepresentation, and unacceptance that so many disabled actors face. I am writing exclusively from a viewpoint of a physically and invisibly disabled person, and I will only be speaking from my own existence. Disability is vast, and I am not speaking from the perspective of a D/deaf, blind, neurodivergent, or visibly disabled person, so these proposed ideas may or may not be applicable to differently disabled identities. My hope is that in using my personal experience and research to offer practical and applicable steps towards equality, I can support our field’s work towards much needed equality for physically disabled actors.
Comments
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Hi Abbie! Thank you for writing this insightful essay. I'm an educator with a background in devised and physical performance, and became physically disabled 4 years ago. This essay is a powerful reminder not just of ableism within theatre institutions, but internalized ableism that inhibits our ability to advocate for ourselves. I don't have much more to add, other than I hope we can connect sometime!
Hi Katie! Thanks for reaching out and leaving this comment. I really loved your essay and love that our writings can work in collaboration with one another! Internalized ableism within disabled and able bodied people alike is so real and I'm glad this is a space where it can be discussed and dismantled. I hope we can connect sometime too!
Hello there. My name is Berri Bergmann
I am at Western Washington University enrolled in a dramaturgy course...
My professor has asked us to create a short podcast interviewing theatre professionals. I am particularly interested in accessible theatre and what it is like navigating the professional theatre world as a disabled individual. As a disabled actor and costume designer I strive to educate and make theatre more accessible for those in the future. I really enjoyed your essay and you have many good points on this topic!
Would you be interested in letting me interview you for my podcast? If so please reply to this comment or email me at [email protected]. Whatever is more convenient for you!
Thank you in advance, I really appreciate your time.
I am a Malawian theatre maker, and I am grateful for your willingness to share your story. It will greatly influence my approach to theatre moving forward. The ability of an actor with a disability to draw from their lived experience and authentically portray a disabled character as you have put it, is a perspective that many of us in Malawi have overlooked. We often cast non-disabled actors, and your insights have helped me recognize how we have unconsciously contributed to ableism rather than working to dismantle it.
Additionally, during my time studying in the USA from 2021 to early 2024, I noticed that Black characters were consistently portrayed by Black actors. I understand this is a complex issue in USA, but it raises an important question: why doesn’t the same standard apply to characters with disabilities being portrayed by actors with disabilities?
Thank you, Abbie.
Hi Misheck,
Thank you so much for your honest and insightful question. I wonder that very often myself, and hope that this essay will reach even more people who will begin to dissect that question. I believe the same standard should be held for people and characters with disabilities, and hope that one day this standard can be the norm. I love that this essay helped you realize some inherent ableism, and really appreciate your transparency in sharing how my words have changed your opinion. Thanks so much!